Tuesday, November 4, 2008

A Day In The Park with Celebrating Ab...









A Day In The Park with Celebrating Abilities Inc.

Please join us on Saturday, December 20, 2008
at Lakes Regional Park
Shelter A-1

Celebrate the abilities of all of our children
and share the Reason for the Season.

Please bring a potluck dish
and an inexpensive, wrapped gift for your children. 
We are hoping for a visit from a very special person!

To RSVP:
Please contact Jacqui Hawkins
at 471-7334
or
jacquih1126@gmail.com



Monday, September 29, 2008




















CELEBRATIONS


OCTOBER 2008














Welcome! Celebrating
Abilities is a small family based support group for special needs
children of all abilities. Located in Southwest Florida, our support
group has families with a wide range of special needs including AD/HD,
Autism Spectrum Disorders, Cerebral Palsy, Down Syndrome, Fragile X,
Gifted and many others.  One of our main goals is to provide a safe
support structure for families facing the challenges of parenting
children with varying abilities. In addition to participation in local
activities, we regularly schedule monthly park outings, parent's night
out and other activities for our kiddies.   Several of our families are
well versed in the difficulties that might arise with IEPs and are
always available to offer advice and to advocate for your children.  We
also provide a secure forum full of information and discussion
opportunities.


While
some of our families have only known each other for a short while, it
is amazing to watch the friendships that have been forged and our
children grow, not only in their social skills, but in their confidence
in themselves.  If you are a family in the Fort Myers, Cape Coral,
Lehigh Acres or surrounding areas, please feel free to check us out. www.celebratingabilitiesinc.org




Board of Directors



From L to R:  April Sanchez, Tracy Ferguson, Tuesday Williams, Jacqui Hawkins, Janeth Garcia, Candy Rhodes and Cyndi Link.
Not Pictured:  Paul Ferguson


President - Jacqui Hawkins
Secretary - Candy Rhodes
Treasurer - Tracy Ferguson
Autism Support - April Sanchez
Diversity Outreach -
Janeth Garcia





Celebrating Abilities Inc
4309 SW 19th Ave
Cape Coral, FL 33914
239-471-7334
info@celebratingabilitiesinc.org



Celebrating Abilities Inc Announces Our Merger With Reno's World




My name is Reno Williams
I am 10 years old and, besides being born legally blind
and having five other diagnoses I also have Asperger’s. I have many
goals and dreams.  One goal is
to start up a foundation about Autism and Autism related disabilities
using terminology that children, youth and adults can actually understand


  My goal is to increase
autism awareness by educating children in elementary schools about autism
and autism related disabilities.  To reduce the stigma that kids
have about their peers who have disabilities and to reduce bullying. 
I have been given the opportunity with the help of Leigh Anna Nowak
from CARD to present not only to teachers but 100’s of children using
power-point presentations I have created.  “How to be a good
friend to kids with Autism”, and I was involved in helping make changes
to CARDS “Truth or Myth” power point. I also have created a “What
is Autism Brochure”, and just finished writing a paper entitled. “Bullies
Be Gone”.  I would like to continue with public speaking to raise
autism awareness. I hope to reach as many schools, children and adults
as I can.


October is Down Syndrome Awareness Month





  • Down syndrome is a chromosome disorder which usually causes delays in physical, intellectual and language development.
  • The exact causes of the chromosomal rearrangement and primary prevention of Down syndrome are currently unknown.
  • Down syndrome is one of the leading clinical causes of mental retardation in the world. It is not related to race, nationality, religion or socioeconomic status.
  • The incidence of Down syndrome in the United States is estimated to be one in every 800 - 1,100 live births.
  • Of all children born in this country each year, approximately 4,000 will have Down syndrome.
  • There are approximately one-quarter million families in the United States affected by Down syndrome.
  • Women under 35 years of age give birth to more than 80 - 85% of children with Down syndrome.
  • There is wide variation in mental abilities, behavior and physical development in individuals with Down syndrome. Each individual has his/her own unique personality, capabilities and talents.
  • 30-50% of the individuals with Down syndrome have heart defects and 8-12% have gastrointestinal tract abnormalities present at birth. Most of these defects are now correctable by surgery.


  • Individuals with Down syndrome benefit from loving homes, early intervention, special education, appropriate medical care and positive public attitudes.
  • In adulthood, many persons with Down syndrome hold jobs, live independently and enjoy recreational opportunities in their communities.


Our New Website

Since our inception in February 2008, we've grown so much that our original website can no longer handle our traffic.   Please check out our new public website at:  www.celebratingabilitiesinc.org.  This site is currently under reconstruction to add NEW and EXCITING features to include Reno's World, please bear with us and check back often.  See ya online!




    Upcoming Events

    • 10/11 -  CAI Board Meeting
    • 10/12 - A Day In The Park






      Friday, November 30, 2007

      IDEA Fairness Restoration Act

      Take Action!
      Contact Your U.S. Representatives on Monday December 3, 2007!

      From the National Down Syndrome Society and National Down Syndrome Congress
      November 30, 2007

      Action Needed
      As we recently reported to you in an information bulletin, the IDEA Fairness Restoration Act (H.R. 4188) was introduced in the House of Representatives on Tuesday, November 13, 2007 by Congressman Chris Van Hollen and Congressman Pete Sessions that would allow prevailing (winning party) parents to recoup expert fees and related costs in proceedings under the Individuals with Disabilities Education Act. Additional background information is provided below.

      In order to get this bill moving through Congress the first step is to get as many co-sponsors from both parties as possible. On Monday December 3, 2007, NDSS and NDSC urge you to contact your Representative with the following message about the IDEA Fairness Restoration Act (H.R. 4188):

      Please co-sponsor the IDEA Fairness Restoration Act (HR 4188). It will level the playing field for parents who must advocate for a free, appropriate education for their child.

      If you wish to call your Representative, you can find out the name and phone number at http://www.ndss.org/index.php?option=com_wrapper&Itemid=174.

      If you wish to send an email, go to: http://capwiz.com/ndss/issues/alert/?alertid=10597931. You will have a sample email available (that you can edit to meet your needs). The email will be sent to the correct Representative based on your home address.

      Additional Background Information

      * In 1986 Congress included language in the IDEA Conference Report (an explanation that accompanies a new law that is not explicitly included in the legislation) that allowed attorney's fees to be awarded to parents or guardians, including "reasonable expenses and fees of expert witnesses and the reasonable costs of any test or evaluation which is found to be necessary for the preparation of the parent or guardian's case.''
      * The Supreme Court in Arlington Central School District v. Murphy (2006) held that courts could no longer award expert fees and other related costs since this intent wasn't explicit in the statute.
      * The IDEA Fairness Restoration Act mirrors the text of the Conference Report almost exactly to fulfill Congress's intent.
      * This bill will not cause a rush of litigation. Parents only initiate due process proceedings and litigation as a last resort. However, in order to even the playing field, this option must be one that parents are financially able to exercise.
      * Expert testimony and expensive evaluations are generally necessary in IDEA proceedings in order for parents to prove their case. Unless they can be reimbursed for expert fees and related costs, most parents will not financially be in a position to advocate for their children's educational rights should these proceedings become necessary.
      * This bill provides that parents can be reimbursed for expert fees and related costs only if they are prevailing parties.

      If you have questions or comments about this action alert, contact Ricki Sabia at rsabia@ndss.org or Susan Goodman at SusanG1961@aol.com.
      Brownback, Kennedy collaborating on Down syndrome bill
      By Sam Hananel
      Associated Press

      Advertisement

      Denise Sawyer didn't find out her second child had Down syndrome until after Ana was born.

      Still, the Mulvane, Kan., special education teacher says she never would have considered terminating her pregnancy, even if a prenatal test had revealed Ana's condition.

      "I could have had the test, but I didn't want it because I knew that it wouldn't have mattered," Sawyer said. "I would have had this baby anyway. What she has given us in our lives is a new perspective."

      But Sawyer's view is not typical of most parents who receive a diagnosis of Down syndrome. Doctors estimate that 80 to 90 percent of women who learn they are carrying a fetus with the genetic disorder decide not to have the child.

      That could change if Congress passes a bill that is an unusual collaboration between Sens. Sam Brownback, R-Kan., and Edward Kennedy, D-Mass., lawmakers with diametrically opposite views on abortion.

      The measure would require doctors to offer more comprehensive medical information about Down syndrome when parents receive a positive test, including facts about life expectancy, referrals to support networks and options for caring for children with the condition.

      The bill is a response to some reports that health professionals often focus only on the most negative aspects of Down syndrome when they counsel patients, ignoring the potential for people with Down syndrome to lead positive, independent lives.

      For Brownback, a longtime abortion opponent, the bill represents a small step toward ending the practice.

      "Here's a chance to advance the cause and have fewer children killed," Brownback said. "I'll partner with anybody we can, whether they're pro-life or pro-choice, if we can move that agenda forward."

      From Kennedy's perspective, though, the legislation is simply about providing more information about a condition many parents know little about. Kennedy's late sister, Rosemary, was born with mental illness and another sister, Eunice Kennedy Shriver, founded the Special Olympics.

      "One of the hardest moments in the life of an expectant mother is when she receives news that she is going to have a child with special needs," Kennedy said. "Access to the best support and information about the condition, and the quality of life for a child born with that condition, can make all the difference to a woman trying to make an informed and difficult decision."

      Kennedy, a prominent champion of abortion rights, does not mention abortion in his support of the bill, and it does not appear to trouble abortion-rights groups.

      "Unlike other legislation Sen. Brownback sponsors, this measure does not include anti-choice rhetoric or policy provisions that would harm women's health," said Nancy Keenan, president of NARAL Pro-Choice America.

      Keenan said the bill appears to support pregnant women "without undermining a woman's right to choose."

      But Brownback believes it is inconsistent to celebrate the accomplishments of special needs children "once they are outside of the womb, and yet they are destroyed in the womb."

      About 2,000 babies are born with Down syndrome in the United States each year, according to the American College of Obstetricians and Gynecologists. The disorder is caused by an extra chromosome and results in mental retardation and, in some babies, serious congenital heart defects.

      The risk of giving birth to a child with Down syndrome increases with age. A 35-year-old woman has a 1 in 378 chance of having a baby with Down syndrome, compared with a 1 in 1,250 chance for a 25-year-old.

      Earlier this year, the American College of Obstetricians and Gynecologists issued new guidelines recommending that all pregnant women be offered prenatal screening for Down syndrome, regardless of age. The noninvasive blood tests, which indicate the level of risk that a fetus has a genetic problem, have led to higher detection rates for Down syndrome. But the group stresses that it is up to the patient to decide whether or not to be screened, without judgment from the physician.

      Dr. James Goldberg, a member of the group's committee on practice bulletins and a San Francisco obstetrician, said he supports the idea of making sure parents are fully informed about Down syndrome.

      "People should have the best information available to them to help them make a decision," Goldberg said.

      Susan May, president of the Down Syndrome Society of Wichita, a group that offers support and information to families of children with the condition, said more information could help families understand that a Down syndrome child can have a fulfilling life, despite the hardships.

      After tests confirmed Down syndrome when she was five months pregnant with her son, May said she was not at all satisfied with how doctors reacted.

      "My husband and I came away from that meeting feeling that the person was identifying the negative things and not talking about the positive," May said. "I definitely think it's important to give more information and try to connect parents with families that have a child with Down syndrome. That made a big difference for me to see other children with Down syndrome thriving and that life doesn't stop."

      Sawyer's daughter, Ana, is now 10 years old and in the fifth grade. She mostly attends regular classes with other public School students in Mulvane, outside Wichita, and has two hours of special education classes in math. Sawyer and her husband also have a 12-year old son with no special needs.

      "I think people have to make their own choices, but I think people who terminate a child just because they have Down syndrome have missed out on a huge positive change in their lives," Sawyer said. "Our kids can teach us so many things that we wouldn't learn otherwise."

      ---

      The bill is S. 1810

      ---

      On the Net:

      Congress: http://thomas.loc.gov

      Down Syndrome Society of Wichita: http://www.dsswichita.org

      American College of Obstetricians and Gynecologists: http://www.acog.org

      Wednesday, November 14, 2007

      BRUSSELS: A 21-year-old man with Down syndrome tied to a metal crib for 11 years. Children, naked from the waist down, left to eat and defecate in their beds. A 7-year-old girl with fluid in her brain left untreated "because she will die anyway."

      These are some of alleged abuses in Serbian state mental institutions and orphanages described in a report to be released Wednesday by Mental Disability Rights International, a Washington-based group that spent four years investigating the conditions and the treatment of some of the nearly 17,200 children and adults with disabilities in institutions in Serbia.

      In the report, which is expected to be read closely by European Union officials who are assessing Serbia's readiness to join the 27-member bloc, researchers concluded that "filthy conditions, contagious diseases, lack of medical care and rehabilitation and a failure to provide oversight renders placement in a Serbian institution life-threatening."

      The institutions investigated include the Institution for Children and Youth Kolevka in Subotica; the Institute for Mentally Ill People in Curug; the Kulina Institution for Children and Youth; the Special Institute for Children and Youth in Stamnica; and psychiatric hospitals in Vrsac and Kovin, east of Belgrade.

      Eric Rosenthal, executive director of the rights group, said the use of physical restraints on children for years at a time was the most extreme he had seen in 14 years as a disability rights advocate. He said there were no enforceable laws in Serbia regulating the use of such restraints. "This is the most horrifying abuse I have seen on powerless children, who are tied to beds and unable to move," he said. "This constitutes a clear case of torture."


      Vladimir Pesic, a Serbian government official dealing with disability issues, declined to comment, saying he had not seen the report. Health officials and hospital staff members quoted in the report said restraining patients was necessary to prevent self-injury.

      Rosenthal is hoping that the report will exert pressure on the European Union to demand that Serbia take immediate action to improve conditions at the institutions.

      Last week, the EU gave pro-Western forces in Serbia a lift by initialing a deal that would accelerate Serbia's joining the union by cementing closer economic and political ties. But the alleged abuses could add to the hurdles Belgrade faces, which include its failure to arrest and turn over war crimes suspects indicted in The Hague and the uncertain future of the breakaway province of Kosovo.

      Rosenthal said the extent of the abuse at mental institutions in Serbia was particularly egregious, given that the international community had spent tens of millions of euros in humanitarian aid to help to rebuild institutions in Serbia after the 1999 NATO-led war against the country when it was led by Slobodan Milosevic.

      "The mental institutions have been newly rebuilt with the help of the West, so the abuse is happening in clean, new buildings built with foreign money," he said. "This tragedy could have been prevented."

      Laurie Ahern, an investigator who toured the Serbian mental institutions with a registered nurse, said she was most alarmed by the case of the man with Down syndrome, who was tied to his metal bed at Stamnica, a state institution southeast of Belgrade.

      When Ahern asked a nurse how long it had been since the patient had left the bed, the nurse replied, "Eleven years," she said.

      "There were rows upon rows of young people with Down syndrome. These children are mobile and can move around. But they are being left in metal coffins to lie there until the day they die," Ahern said.

      Monday, November 5, 2007

      Kellie Greenwald, who has Down syndrome, shares her secrets of happiness
      Beth Ashley
      Article Launched: 11/04/2007 11:27:12 PM PST

      Kellie Greenwald talks about her new book at The John Peterson Hall in Ross. Greenwald, 29, is the author and illustrator of Kellie s Book, the story of her life with Down syndrome. (Special to the IJ/Christine H. Wetzel)
      Kellie Greenwald smiles in delight.

      "I'm famous," she says.

      Greenwald, 29, a resident of The Cedars in Ross, is enjoying her day in the sun - as author and illustrator of "Kellie's Book," the story of her life with Down syndrome.

      The book's subtitle is "The Art of the Possible," and her mom Carla and dad Hank Greenwald, retired play-by-play announcer for the San Francisco Giants, say it is a testimony to how far such a person can go, given early treatment.

      Syracuse professor of education Corinne Smith calls Kellie Greenwald's book "a celebration of life - a reflection of life's joys from the perspective of a young woman with Down syndrome."

      And joyous it is. Greenwald has registered her happiest moments in neatly written
      A drawing by artist Kellie Greedwald from her book "Kellie's book: The art of the possible" of her cat Sweet Pea.
      paragraphs and brightly colorful Prisma-Color paintings. In one painting, she is playing baseball at College of Marin. "I like playing with my friends." In another, she is at her high school prom: "I feel pretty in my new dress and my flowers."

      "I'm very happy I wrote this book," says Greenwald, face wreathed in smiles.

      The book was created with guidance from her art teacher, Susan Vickery, at the Victory Center for Arts and Communications in Ross where Greenwald goes every weekday for
      classes. "Kellie is a total colorist," Vickery said. "She needed no coaching at all in terms of colors or of composition. She had a very natural talent."

      The Victory Center is operated by The Cedars, which began in 1919 as a school for the mentally retarded and grew into an institution serving developmentally disabled with a variety of programs. Greenwald lives at a Cedars residence, John Peterson Hall.

      The book took more than two years to complete. When her dad wrote his own autobiography,
      Hank Greenwald and Carla Greenwald listen as their daughter Kellie Greenwald talks about her new book she wrote.
      "This Copyrighted Broadcast," in 1999, she wanted to write one, too. "Now that the book is out, I'm thrilled," he said. A special moment was seeing it listed on Amazon.com, "and there was Kellie, with all the other authors."

      "I'm a very proud mother," says Carla.

      Vickery praises Kellie Greenwald for her tenacity in completing the book. "She was very determined to do it right."

      It was published by Rayve Productions in Windsor, owned by Norman and Barbara Ray. Barbara Ray hopes Greenwald's
      The cover of Kellie Greedwald's book.
      book will help educate readers about those who have Down syndrome. Her grandchildren, for instance, "didn't know they were real people."

      The book was printed - full color - in Hong Kong and costs $24.95. It can be ordered at any bookstore. Her parents hope to place it in schools. Part of the proceeds will go to the Victory Center.

      Seventeen days after her birth in San Francisco, Greenwald's mother took her to the Easter Seals Society where she was enrolled in physical therapy, occupational
      A drawing by artist Kellie Greedwald from her book.
      therapy and speech classes. She attended the Living and Learning Center in San Francisco as a small child, and learned sign language, reading and writing from a speech therapist provided by the Elks Club of California and Hawaii.

      She was mainstreamed through elementary and high school, and lived at home until she was 18. Thereafter, she lived in a group home in Corte Madera, operated by Marin Association for Retarded Citizens, now called Lifehouse. She took special classes at College of Marin, and received a certificate of graduation in May 2000.

      For a time she worked at Longs Drug Store in San Anselmo and at Pacific Cafe in Kentfield, folding napkins and dusting tables.

      Meanwhile, she traveled often to baseball games with her dad - he also worked for the New York Yankees and the Oakland A's - and to spring training with the Giants. She became an inveterate fan, and counts players and broadcasters among her closest friends.

      Other people know how to "work a room," says her dad. "She knew how to work a ballpark."

      Former Giants outfielder Chili Davis is her favorite ballplayer: He held her in his arms when she was a baby. Tom Breneman, who broadcasts for the Cincinatti Reds, is her "first love."

      Greenwald still spends big chunks of time with her family, and goes with them each year to Florida, where they have a second home. She also visits her brother Doug, a broadcaster for the Fresno Grizzlies, a Triple A farm club for the Giants. "I put the headset on and we do an interview."

      Doug has been "very good with her," says father Hank. "When they were young, he would needle her, and her need to respond really helped her develop speech." He emphasizes the need for early stimulation and training. "Our message to parents of Down syndrome children - get them into a program as early as possible."

      Though Kellie Greenwald confesses to moments of sadness and frustration, she considers herself fortunate, enjoying her new independence as a resident of The Cedars, with her own brightly furnished room, a new set of friends, her own computer, her guitar. "I love playing very softly for my friends."

      Meanwhille, she enjoys the whirl of book signings. She is scheduled to sign at 2 p.m. Nov. 17 at Borders in San Rafael.

      "I'm famous," she reiterates. "I'm very smart."

      "And very modest," says her father, smiling broadly.

      Contact Beth Ashley via e-mail at bashley@marinij.com

      Wednesday, October 31, 2007

      MY ARTS: Actor in 'Mountain of Peace' was himself 'a child of war' in Lebanon



      By SUSAN D. BRANDENBURG, Correspondent




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      Last modified 10/16/2007 - 10:23 am

      Joseph Dagher has never acted on stage, nor does he sing ("not even in the shower!"), but recently at the University of North Florida's Lazzara Theater, "I was a child of war," said Dagher. "I read the script and knew I must be in the play."

      Dagher emigrated from war-torn Lebanon in 1984. He is the owner of Dagher Printing on the Southside and was chosen U.S. Business Leader of the Year in 2003.

      With his 8-year old daughter, Lamia, by his side, Dagher portrayed Traeger, the host of the "afterlife" in the story of five loved ones who, lost to their families as a result of war, return to earth to lead people to the mythical Mountain of Peace.

      "As kids, we pleaded and cried, begging our families to do something to stop war," said Dagher. "Now, there is somebody out there listening to the children and doing something. Her name is Frances Key."

      Founder of the International Peace Performers, a multi-cultural children's musical group, Key wrote the script and most of the 15 songs in Mountain of Peace, which was adopted by UNF as the opening event of Peace Awareness Week Oct. 1-6.

      Professor John W. Frank, UNF's coordinator for Peace Awareness Week, welcomed about 400 audience members to the play, inviting all to "come and climb the Mountain of Peace with me."

      But war broke out before the audience could ascend the mountain. As five diverse families on different areas of the stage sat down to eat a meal and talked of world events, the children asked their parents, "Why do they hate us?"

      At each table, parents sang the same chant-like explanation of war: "They are different. We don't trust them. They are different. We don't like them. They are different. We don't know them. We must kill them or they will kill us."

      Soon, dark-clad invaders appeared on stage, joining in the song as they surrounded each family and murdered a loved one.

      Directed by Jeremie Cook and choreographed by Wendy Sugalski with Linda Ingram, the play featured a colorful, multi-cultural cast of more than 50 dancers, singers, instrumentalists and actors of all ages. The performance was dedicated to the memory of Russell J. Bloom, former director of Lutheran Social Services Refugee Resettlement Program, who died in June.

      Love, unity and reconciliation were at the summit of the mountain. Throughout an evening of inspiring moments, as the "oneness" of the human race was repeatedly stressed, one of the sparkling moments on stage was when 20-year old Moira Rossi made her "peace summit" speech.

      Born with Down syndrome, Rossi is a student at UNF in the Disability Resource Center. Pointing at members of the audience as she spoke on behalf of the world's disabled, she said: "We eat and play and work and love just like you and you and you. We are all different, and we are all the same."